johns hopkins prostate cancer second opinion
Someone advised to always get my PSA checked at the same facility in order to make sure the same protocol and lab is used, is that critical? We experienced information overload and decision/analysis paralysis. Recently diagnosed a Gleason 3 + 3. I am already positively surprised that I am still alive 4.5 years after my diagnosis. To learn more about how to get a Neuropathology second opinion, please visit our Neuropathology Division second opinions website. Benign Processes: My PSA went up from 3.5 post FLA (It was 7.2 pre-procedure) to 6.7 in 2021, so I went to another radiologist to do an MRI guided biopsy of the suspected area that was near the prior ablation zone. desired outcome. The Journal of the American Board of Family Medicine published a study in 2017 that found that many patients do not get a second opinion outside of their PCPs original referral2. Prostate Cancer Pathology in 2021 | Jonathan Epstein, MD | PCRI 2021 Conference, Why Prostate Cancer Survivor John Shearron Thinks Its Important To Do Your Research | PCRI, John Hopkins Prostate Cancer Second Opinion, a higher risk of developing uterine cancer, surgery may not always be necessary for all breast cancer patients, The cancer vanished in every single participant, Long Term Side Effects Of Brachytherapy For Prostate Cancer, treat rare and complex conditions through breakthrough fetal procedures, Prostate Cancer External Beam Radiation Side Effects, Can Enlarged Prostate Cause Blood Clots In Urine, Life Expectancy Stage 4 Prostate Cancer No Treatment, Prostate Cancer Spread To Skull Prognosis, Diagnostic Procedures For Prostate Cancer. Most reputable HMOs can, however, deliver state of the art treatment for most cancers. A second opinion is a review of the cancer diagnosis and the treatment recommendations of the physician who is treating the cancer by another, independent physician. Men were asked if they obtained a second opinion from a urologist, and the reasons why. The .gov means its official. Be sure to confirm your diagnosis at a center of excellence. I am unfortunately "officially" joining the club after getting my biopsy results today. The Radiation Oncologist knew of Dr Busch (by now in Alpharetta, GA) and spoke highly of him. Sometimes, you may find out about treatment options you didnt know were available. I wish the VA would be more informative about this disease they owe it to our veterans. 1. Greatest dimension 0.7cm . Lesion #1 (index): PI-RADS v2.1 score 4, lesion measuring 10 mm centered at the right mid/apex posteromedial peripheral zone; findings equivocal for extraprostatic extension; no evidence of seminal vesicle invasion; The low ADC value in this lesion increases the likelihood of Gleason grade group 2 or higher. This teamwork ensures the best possible patient outcomes. I frequently make a 2 hour car ride and I have to stop about 25% of the time and when I don't, the urgency is a bit more evident and with the urgency come some hesitancy, but not terrible. We prioritized treatment as AS, FLA/TULSA (if a lesion ever presented itself), and Proton Beam Radiation. However, seeing him will be another 8 weeks, but he wants my biopsy slides (second opinion) before we meet. Thanks for Everyone's Help, 3. __________________________________________________________________________July 2022I've neglected to make journal entries for a couple years, so I will recap below and continue with what I have done and what I have learned.In 2018, at the age of 48, after a routine physical that showed a PSA of (4.X) and after a TRUS biopsy, I was diagnosed with PCa. The James Buchanan Brady Urological Institute, Masks are required inside all of our care facilities, COVID-19 testing locations on Maryland.gov, Precision Medicine Center of Excellence for Prostate Cancer, robotic-assisted radical laparoscopic prostatectomies, The Brady Urological Institute and the Johns Hopkins Kimmel Cancer Center take a, Our urologic surgeons have extensive experience performing, Our surgeons, oncologists and radiologists are also world leaders in prostate cancer research, giving patients access to the latest discoveries and. Prostate, left medial apex: It's really that simple! Also Check: Prostate Cancer Stage 7 Treatment. PCPs can be a great help to navigate the medical marketplace and provide an unbiased voice of reason when it comes to making hard choices. These results, if validated in other studies, justify additional investigation on how second opinions can contribute to increasing the value of cancer care, the authors concluded. The TRUS biopsy is behind me, the second opinion from Johns Hopkins is behind me, and its time for next steps. Therefore, the value of these second opinions remains unknown. Here are seven tips for seeking second opinions for prostate cancer: Before getting a second opinion, its important to know your stage of prostate cancer. Blessings. Hillen MA, Medendorp NM, Daams JG, Smets EMA. not hear all the viable treatment options or receive the most up to date -------------------------------------------------------- Hi JM "Numerous publications show the clinical and economic benefits of obtaining a second opinion for Pathology specimens. I fear limiting myself to an inferior treatment because the people I talk to have hammers, therefore everything must be a nail. It starts many years ago. Instead, I did my homework. I assume the data on gleason scoring is much more robust/reliable than genomics as it has been around longer and used more extensively. Experts believe that this study is the first in history to have achieved such results. Some of the more common treatments that you and your doctor may discuss include: Prostate cancer experts at the Brady Urological Institute have created tools that help patients and doctors across the world assess risk and make treatment decisions. An accurate diagnosis is essential to ensure the most effective treatment. 53 years old 1. * PIRADS v2 Score: 5 By taking the extra time to seek a second opinion, you have a better chance at finding the most up-to-date approach and an experienced doctor. About 80 percent of prostate cancers are diagnosed at a localized stage, which means that the cancer hasnt spread outside of the prostate. Benign Processes: This has raised some questions on all the scans so far. Patient preferences and urologist recommendations among local-stage prostate cancer patients who present for initial consultation and second opinions. Medical record collection from doctors and hospitals. Didn't know if she had the catheter in far enough and not getting any urine through itwondered if she had inflated the balloon enough and wondering if it was the reason that I have developed an abscess. Last year, Epstein's lab reviewed the pathology reports of 30,000 cases in which patients requested second opinions. Though, for the most part the reports seem encouraging.I am curious if anyone has had something similar. A blocked urethra can also damage the kidneys. There are three main types of doctors that manage prostate cancer: urologists, radiation oncologists, and medical oncologists. DIAGNOSIS: If you are considering undergoing a specialized treatment, such as cancer surgery, within your HMO, it is important to inquire about the number of such procedures performed each year by the HMO and the results. Bethesda, MD 20894, Web Policies They are not objective. There are lots of lessons learned on the forum. 10. We specialize in minimally invasive treatments for prostate cancer such as: We place a high priority on sparing the nerves and tissue around the prostate whenever possible. The total number of cores identified is 3 I've had what I would consider a fluctuating PSA since first tested in November 2018. Especially opinions other than those of the first Urologist you see. You may be concerned that the cancer will grow rapidly out of control before you are able to get a second opinion. 7 in 10 PATIENTS WHO GET A SECOND OPINION AT CTCA CHOOSE TO TREAT WITH US Call now to find out why: 800.888.8888 Rosie P. Colorectal Cancer Prostate cancer is the second-most diagnosed cancer in American men. And should I treat prostatitis before FLA? I have had a CT of the pelvic area - negative and a whole body bone scan - negative. I did a book review with his first book for several veterans groups including the Americal Division Veterans Organization which with I served at age 19. Brief MRI history. A. Prostate, right base, core biopsy: Some docs say clean up the prostatitis while others tell me to avoid overuse of Cipro as it loses its effectiveness over time. Epstein, who views about 12,000 slides a year, called for calm in my case and suggested another biopsy in six months. 4: Prostate, right medial base For all other cancer appointments, please call: 1-855-702-8222. I find that when I'm trapped in the cockpit not able to use the bathroom for a long time is when I experience that most. Find a doctor at The Johns Hopkins Hospital, Johns Hopkins Bayview Medical Center or Johns Hopkins Community Physicians. 1. But was able to walk right into the JH Urology clinic for immediate treatment (flushing of bladder cleared everything up). By seeking second opinions and hearing the benefits and drawbacks of a range of treatment options for your specific stage, you will be more equipped to make educated decisions. In the rare chance a baby needs highly specialized care, the team at Johns Hopkins is available to treat rare and complex conditions through breakthrough fetal procedures. IMPRESSION: 2020 Jul 21;19(1):112. doi: 10.1186/s12904-020-00619-9. I really liked the new group I went to as they identified the lesion right away, unlike the radiologist who performed the first procedure, and they also have a urologist on staff as well monitoring everything. No extraprostatic extension. LESION 2 Confounding this, I have read that the different genomic tests can disagree with each other, and that Oncotype is usually a more aggressive finding. They agreed with the PI-RADS 4. In terms of cancer, changes can be from cancer to benign (or vice versa) or from one type of cancer to another, which could . Their opinions are widely held to be definitive. Some men will have a very enlarged prostate, whereas others will have a mild enlargement. He schedules appointments with a Radiologist and two local surgeons. My questions are: According to the doctor it is around 3 mm. The linear amount of tissue with carcinoma is 23 mm Primary Gleason grade: 3 7 People with PN had an increased likelihood of: 6 Eating disorders Self-harm And when I attempt to ask questions about intradcutal, I get responses about how little is known about it because it's so rare or that it is controversial or that they're not familiar with the study I'm referencing. Overall PIRADS Score: 2/5 How could this compare using only partial slide re-reading? Benign prostatic tissue They want him to start radiation 25 sessions and chemo pills of Casodex 50 mg 28 pills. If you're seeking a second opinion on treatment (see below), the specialist you choose often will be able to order a pathology second opinion for you, through his or her hospital's pathology department. One Johns Hopkins study showed that out of 14,000 men who had surgery and were found to have Gleason 6 cancer confined to the prostate, "zero of those 14,000 men had lymph node metastases. 1st opinion. Because I had an implant in my ear, they would only give me a 1.5T MRI. Benign Processes: 3: Prostate, right medial apex This urologist can get you in for surgery next week. The more often a doctor diagnoses and treats prostate cancer the more proficient they become. TZ zone more beneficial, but fairly large compared to whole gland and proximity to capsule edge would likely mean treatment would be suggested.